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2024 ACS CAN Advocacy Accomplishments report available

The 2024 American Cancer Society Cancer Action Network (ACS CAN) Advocacy Accomplishments report is now available. Throughout the past year, ACS CAN continued to deliver phenomenal progress in the fight to end cancer as we know it, for everyone.  

The 2024 report highlights this growth, including the numerous campaigns and advocacy efforts that resulted in more than 29 million lives touched via improving access to advancements in cancer care, advancing tobacco control measures, and increasing funding for cancer research.

The report is in an entirely digital format for optimized mobile viewing on phones, tablets and desktop computers and can be accessed at fightcancer.org/accomplishments. In addition to the report, an impact infographic is available in both English and Spanish on fightcancer.org​. 

Please share the 2024 Advocacy Accomplishments report with volunteers, donors, partners and other interested parties to help spread the word about the tremendous impact advocacy contributes to the cancer fight.  ​

  • March Advocacy Update

    ​As the daylight hours grow longer here in D.C., and we begin to feel the warmth of spring this month, I encourage everyone to prioritize their mental and physical well-being while we continue our work for cancer patients and their families. The developments coming out of Washington these first 100 days have been numerous and changing rapidly. With the busy activity on Capitol Hill and in state legislative sessions, the ACS CAN team has been working at full speed. I am grateful for my dedicated colleagues who recognize the criticality of this moment and the role ACS CAN continues to play in protecting access to affordable health care and ensuring future cancer breakthroughs for millions of people in the U.S.

    ​Last night, during a joint session address to Congress, President Trump elevated increased childhood cancer incidence rates over past decades. In response, we affirmed our commitment to working with our childhood cancer coalition partners, the administration and Congress to drive further progress in the fight against cancer. We stressed that the most effective pathways are through sustained and robust government investment in cancer research and prevention and ensuring access to affordable, comprehensive health care.

    This past month, Congress kicked off its budget process, ushering in increased threats to Medicaid. In anticipation, we proactively launched a targeted advertising campaign and activated our grassroots network to send messages and call their lawmakers, urging them to oppose any cuts to a program that serves 1 in 10 adults with a history of cancer and 1 in 3 children who are diagnosed. However, on February 25th, the House voted to advance a budget reconciliation blueprint that included instructions for the House Energy & Commerce Committee to identify $880 billion in savings, setting the stage for deep cuts to Medicaid.

    We are disappointed by this outcome, but the fight continues, and we're encouraged by the passion of advocates nationwide. The work of our volunteers in activating against Medicaid cuts has been incredible! Volunteers have sent nearly 40,000 emails, made over 6,000 calls, and had almost 300 in-district meetings or drop-bys to offices. Our ads featuring Milly, a mom and attorney from Oklahoma who was able to fight her breast cancer diagnosis due to Medicaid, have generated 3.7 million impressions in targeted districts. We will continue to elevate patient voices to demonstrate the devastating impact that reducing access to health insurance through Medicaid cuts would have on millions of lives.​

    ​​​Along with our Medicaid campaign, we have launched advertising and a volunteer action urging Congress to pass the FY25 funding bill, including robust cancer research and prevention funding at the National Institutes of Health (NIH), the National Cancer Institute (NCI), and the Centers for Disease Control and Prevention (CDC). We also continue to urge Congress to extend enhanced tax credits for Marketplace health insurance plans and build bipartisan, bi-cameral co- sponsorship for the Nancy Gardner Sewell Medicare Multi-Cancer Early Detection (MCED) Screening Coverage Act.

    While ACS CAN works to protect access to affordable, quality care and advocate for increased funding for cancer research, we've been analyzing executive actions and meeting with research institute and center directors to understand potential and real-time patient and overall oncology ecosystem impact. We are reaching out to critical administration roles once they are confirmed to open dialogue and elevate opportunities to collaborate on our critical cancer mission. As we navigate and evaluate proposals with an eye toward evidence-based action, we are working fervently to raise our voice strategically so we can reduce the impact of any decisions on cancer patients, survivors, and their families and – as it pertains to the importance of continued research that will drive innovation – the impact on future patients and survivors.​

    ACS CAN has issued statements on the record:  

    Jointly with Research!America and other advocacy organizations urging the Senate Appropriations Committee to prioritize robust funding for the National Institutes of Health (NIH) in the FY 2025 appropriations bill. 

    We are grateful for your role in helping us execute our strategic, integrated, and intentional 100-day federal campaign, along with impactful state campaigns. Thank you for your ongoing engagement with the cancer community as we work to understand the flurry of executive activity. I look forward to our impact together in the months ahead.  

    Lisa​

    ​Survivor Views: ACS CAN recently released findings from its Survivor Views cohort of cancer patients and recent survivors that found that cancer patients and survivors strongly support maintaining funding for Medicaid and protections for preexisting conditions and that choice in treatment modality is overwhelmingly important to cancer patients and survivors.

    ​Celebrating Women's History Month: March is a time to honor the contributions of women throughout history. This March, we are honored to celebrate the 2025 theme of "Moving Forward Together: Women Educating and Inspiring Generations" by highlighting women who are champions in the fight against cancer and have dedicated their lives to leadership. Follow along on our social ​channels for more throughout the month.

    Judicial Updates

    Preventive Services: ACS CAN led an amicus brief filed at the U.S. Supreme Court on February 25th for 33 patient and physician professional organizations in the case of Braidwood Management v. Kennedy. The case is critical to our mission as the U.S. Supreme Court will determine whether the provision of the Affordable Care Act that requires most private insurers cover services recommended by the U.S. Preventive Services Task Force without cost sharing is constitutional. The case could affect the ability of over 150 million people to receive colon, cervical, and lung cancer screenings, as well as tobacco cessation services. Our brief provided extensive scientific data on how preventive services save lives and are cost-effective, featuring original research by ACS. 

    Immigrant Access to Health Care: ACS CAN led amicus briefs in two different lawsuits defending the ability of immigrants to the U.S. to access health care services by enrolling in comprehensive insurance plans. The first argued that enrollment in Medicaid should not adversely affect an immigrant's legal status in the U.S. under the "public charge" rule in Texas v. Mayorkas. The second argued that Deferred Action for Childhood Arrivals (DACA) recipients should be able to enroll in Affordable Care Act exchanges. Unfortunately, the cases are now on hold as the new administration is reconsidering the underlying rules that allowed such coverage. ​

    Federal Updates

    ​​​Alliance for Childhood Cancer Action Days: 

    Thirty-eight ACS CAN volunteers joined 350 other cancer patients, survivors and family membersVarious ACS CAN photos in front of Capitol Hill in Washington D.C. with groups of people in front of the buildings. from 39 states and D.C. in the nation's capital for the 15th Annual Alliance for Childhood Cancer Action Days, a two-day event organized by the Alliance for Childhood Cancer, of which ACS CAN is a member. Participants asked lawmakers to continue funding the Childhood Cancer Survivorship, Treatment, Access and Research (STAR) Act to improve the quality of life of childhood cancer patients, survivors and their families. They also asked lawmakers to support the Accelerating Kids' Access to Care ACT, the Creating Hope Reauthorization Act, and the RARE Act. Additionally, the Alliance urged Congress to continue to make strong investments in the National Institutes for Health and the National Cancer Institute to help advance discoveries in the fight against childhood cancer.

    ​MCED Legislation Reintroduced in the House and Senate Aimed at Increasing Early Cancer Detection in Medicare: The Nancy Gardner Sewell Medicare Multi-Cancer Early Detection Screening Coverage Act would allow Medicare to cover MCED tests, once approved by the U.S. Food and Drug Administration (FDA) and clinical benefit has been shown. With 320 House and 65 Senate sponsors, MCED was the most supported bi-cameral and bi-partisan health care legislation during the 118th Congress. For the 119th Congress the House bill (HR 842) has 99 sponsors and the Senate bill (S.339) has 14.

    ​PSA Screening for HIM Act Introduced in the House: On February 13th, the Prostate-Specific Antigen Screening for High-risk Insured Men (PSA Screening for HIM) Act was introduced in the United States House of Representatives by Reps. Neal Dunn, M.D. (R-FL) and Yvette Clarke (D-NY) with Representatives Greg Murphy (R-NC) and Troy Carter (D-LA) as cosponsors. The legislation is aimed at eliminating financial barriers to prostate cancer screenings. A week prior, Senator John Boozman (R-AR) introduced S. 297, the PSA Screening for HIM Act in the United States Senate, along with Senator Cory Booker (D-NJ). This bipartisan legislative proposal would waive cost-sharing requirements for men with the highest risk of prostate cancer, focusing on those with a family history of the disease. For men who have a family history of prostate cancer, a diagnosis is twice as likely compared to the average population. If this bill passes, individuals at an increased risk of developing prostate cancer would be able to receive prostate cancer screening without deductibles, copayments, or coinsurances.

    ​FY25 Appropriations: Congress is running out of time to agree on a path forward for Fiscal Year 2025 spending, with the current continuing resolution set to expire on March 14th. ASC CAN is continuing our campaign urging Congress to pass an FY25 spending bill with the highest possible funding increases as soon as possible. As part of our campaign efforts, ACS CAN ran ads urging Congressional action, continues our digital campaign work and will lead a lobby day on March 6th through our One Voice Against Cancer (OVAC) coalition.

    ​Responding to Executive Actions Related to Cancer Research: In response to recent executive actions that would jeopardize progress in cancer research, ACS CAN released a press statement on the impact of cuts to cancer research, One Voice Against Cancer (OVAC, which is chaired by ACS CAN) released a statement on the impact of cuts to cancer research, and ACS CAN signed onto a community letter requesting a funding boost for NIH and referencing concerns with changes to policies that would impact grant funding for research institutions.​​

    Policy Update

    On February 10th, ACS CAN and the American Cancer Society (ACS) submitted a comment letter on the Scientific Report of the 2025 Dietary Guidelines Advisory Committee. This report is used by the U.S. Departments of Health and Human Services and Agriculture to update the U.S. Dietary Guidelines for Americans (DGAs). The DGAs are important because they form the basis of all federal nutrition policies and programs, inform many state and local nutrition initiatives, and inform the general public on how to maintain a healthy diet. For people who do not use tobacco, diet, body weight, physical activity and alcohol intake are the most important modifiable cancer risk factors. ​

    State Updates​

    In February, Tennessee Governor Bill Lee's budget was released, and the $2.6 million JUUL settlement funds for FY26 were allocated to the Department of Health's Tobacco Use Prevention and Control Program. This was a direct result of our lobbying last year and work with the AG's Office, the Department of Health, and the Governor's Office to ensure settlement funds would be dedicated to efforts to reduce the tobacco burden in the state. 

    In Montana, HB245, Medicaid reauthorization legislation, continues to see success. The bill passed the State House and Senate and is headed to the governor's desk. This bill would remove the sunset provision, protecting Medicaid in Montana for years to come. 

    North Dakota's co-pay accumulator legislation, HB 1283, successfully passed the State House with a strong vote of 69 to 22. This victory follows the removal of harmful amendments proposed by insurance groups. The bill will now be moved to the State Senate for further consideration. ACS CAN testified in support of the bill, and we will collaborate with allies such as the local chapters of Rare Diseases and Bleeding Disorders, as well as Susan G. Komen, to advocate for its approval in the Senate. The proposed legislation would require all state-regulated health policies to eliminate patient out-of-pocket costs for medically necessary diagnostic and supplemental breast imaging. It would require breast diagnostic mammograms (x-rays), breast ultrasounds, and breast magnetic resonance imaging (MRI) scans to be covered at no-cost-share when deemed medically necessary by their physician. 

    In Idaho, the Medicaid repeal bill that challenged the new House bill proposal, which would roll back Idahoans' access to care, was killed after overwhelming opposition. Broad opposition to this bill, HB 138, came from state residents who voted to initiate Medicaid expansion, business leaders, economists, health care providers, professionals, and advocates from across the spectrum of disciplines, including cancer care, children, and mental health. ACS CAN is grateful that lawmakers heard those voices and decided to end what was a clear effort at Medicaid expansion repeal. ​

    Advocacy Updates

    • ​​The Hill: Trump's move to slash research funding shakes medical community 
    • NBC: They were told to get extra breast cancer screenings. Then they got stuck with the bill. 
    • ABC News: Cancer research group calls on Trump administration to restore data access 
    • KFF Health News: Across the South, Rural Health Care Has Become 'Trendy.' Medicaid Expansion Has Not. 
    • AP: Advocates push for Medicaid expansion in holdout Alabama 
    • Fox Local Phoenix: Cancer Day of Action at the Arizona State Capitol
    • Oklahoma News 4: OK Cancer Action Day at the OK State Capitol 
    • Spectrum News: Advocates call for paid family and medical leave reform in New York 
    • KLEW Idaho: House Bill 328 looks to cut Medicaid Expansion costs, replacing House Bill 138 
    • Fresno Bee: Opinion: Fresno Must Ensure Stores Don't Sell Tobacco Products to Youth ​
    ​​

  • ACS CAN welcomes two new members to its National Board of Directors

    The American Cancer Society Cancer Action Network (ACS CAN) announced the addition of two new members to its Board of Directors for 2025. The Board provides leadership and guidance for ACS CAN. 

     
    "We are proud to welcome two distinguished advocates, both with long histories of advocating for cancer patients with the American Cancer Society (ACS) and ACS CAN to our Board of Directors," said Lisa Lacasse, president of ACS CAN. "Our mission to advocate for evidence-based public policies to reduce the cancer burden for everyone will be bolstered by the steadfast dedication, passion and expertise these leaders bring with them.” 
     
    The two new board members are Vanessa Ramirez (pictured at left) of Phoenix, AZ, and Gwen Spencer (pictured at right) of Boston, MA. 
     
    As the host of Arizona Midday! on the NBC affiliate in Phoenix and in-game host for the MLB’s Arizona Diamondbacks, Vanessa Ramirez  uses her platform to amplify the needs of cancer patients, survivors, and their families. 

    Ramirez has volunteered with ACS and ACS CAN since 2012. During her tenure, she has dedicated her time to several events, including Leadership Summit and Lobby Day in Washington, D.C., where she urged members of Congress to support federal policies to aid in the fight against cancer. Ramirez has also attended and helped promote Cancer Action Day, which is held each year at the Arizona State Capitol. Her dedication as an advocate through fundraising and awareness earned her the Rising Star Woman of the Year Award in 2016. 

    Ramirez’s passion for cancer advocacy first began after her father, who never used tobacco, passed away from lung cancer in 2011. While the grief was unbearable at times, Ramirez decided to keep her father’s memory alive by helping others affected by cancer. Ramirez now organizes a fundraiser named after her late father, The Frank Ramirez Breathe to Believe fundraiser, which has raised more than $100,000 for cancer organizations collectively. 

    She looks forward to extending her advocacy work to a national platform while continuing to raise awareness about the importance of getting screened. 

    A seasoned partner at one of the world's largest accounting firms, PwC, Gwen Spencer served nearly three decades with the prestigious organization. 

    Spencer is the chair emeritus of the American Cancer Society’s Eastern New England Area board of directors, having served on the board since 2018. During her tenure, she was instrumental in providing leadership and strategic guidance to its membership. Spencer saw measurable results in this volunteer leadership role, contributing to the New England Area exceeding its fundraising goal in recent years. 

    Spencer’s cancer advocacy work includes fundraising and engagement for the ACS CAN’s Annual New England Research and Health Equity Breakfast, as well as consistent support of the state’s annual Cancer Action Day on Beacon Hill. 

    Over the past four years, Spencer has participated in many additional community events to support the Society’s mission, including Making Strides Against Breast Cancer of Boston, Bicycles Battling Cancer, and the Boston Hope Lodge.  

    Spencer is now retired and lives in Sutton, MA, with her husband and has two college-aged children. 
     
    “ACS CAN looks forward to an impactful year of cancer advocacy under the leadership of our Board of Directors, particularly with the newly added expertise and influence of Vanessa and Gwen. We thank them for their commitment to the organization’s lifesaving mission,” continued Lacasse. 

    The ACS CAN Board of Directors consists of 18 members who lead ACS CAN in partnership with ACS CAN and American Cancer Society Interim CEO Dr. Wayne A. I. Frederick and ACS CAN President Lisa Lacasse. 

  • Senate legislation addresses prostate cancer screening costs

    On Feb. 13​, the Prostate-Specific Antigen Screening for High-risk Insured Men (PSA Screening for HIM) Act was introduced in the United States House of Representatives by Representatives Neal Dunn, MD (R-FL) and Yvette Clarke (D-NY) with Representatives Greg Murphy (R-NC) and Troy Carter (D-LA) as cosponsors. Last week, Senator John Boozman (R-AR) introduced it in the United States Senate, along with Senator Cory Booker (D-NJ).

    This bipartisan legislative proposal would waive cost-sharing requirements for men with the highest risk of prostate cancer, focusing on those with a family history of the disease. For men who have a family history of prostate cancer, a diagnosis is twice as likely compared to the average population. If this bill passes, men at an increased risk of developing prostate cancer would be able to receive prostate cancer screening without deductibles, copayments, or coinsurances.​

    Prostate cancer is the second leading cause of cancer death for men in the U.S. When the disease is detected early, the 5-year survival rate is nearly 100%. However, when the disease is detected in advanced stages, the likelihood of survival drops to just 37%. 

    The American Cancer Society Cancer Action Network (ACS CAN) supports the PSA Screening for HIM Act and is working with lawmakers to pass legislation at both the state and federal levels that will eliminate out-of-pocket costs for patients and improve access to prostate cancer screening tests. 

    “Out of pocket costs can be a major obstacle to accessing screening,” said Dr. Wayne A. I. Frederick, interim chief executive officer of the American Cancer Society and ACS CAN. “The PSA Screening for HIM Act will help remove this barrier and enable those at high risk to get the prostate cancer screening tests they need to detect prostate cancer at the earliest, most treatable stage.” 

    The PSA Screening for HIM Act could also help improve health outcomes for those at the highest risk of prostate cancer. According to the American Cancer Society, the incidence of prostate cancer among Black men is almost 70% higher than in White men. Black men are also more than twice as likely to die from prostate cancer when compared to White men. Moreover, having a first-degree relative (father or brother) with prostate cancer more than doubles the chance of developing the disease. 

    “Everyone should have a fair and just opportunity to prevent, detect, treat and survive cancer,” said Dr. Frederick. “We urge the Senate to pass this legislation to help save more lives.” 

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  • February Advocacy Update

    ​With new and returning elected officials in Congress and the new Administration moving at pace, ACS CAN is navigating the flurry of activity and shifting priorities in our nation's capital. While we continue to see new developments daily that may impact our strategies, our mission remains unchanged, and priority work on behalf of cancer patients and their families demands our unwavering attention. 

    Some recent executive acti​ons and legislative and regulatory proposals at both federal and state levels are directly related to programs important to our cancer mission, as well as challenge our core values of inclusion and health equity. As we work to understand specifics, ACS CAN is committed to engaging policymakers to ensure that everyone has the chance to prevent, detect, treat, and survive cancer. We are monitoring developments at federal, state, local, and judicial levels, and our priority work continues, rooted in scientific evidence that supports policy interventions that reduce the cancer burden nationwide. 

    At the federal level, we have launched a strategic 100-day campaign to advocate for our highest priorities. ACS CAN is advocating for uninterrupted, sustained, and robust funding for cancer research and affordable access to comprehensive health care. We are actively urging opposition to any cuts or barriers that compromise access to Medicaid. Lawmakers have specifically identified significant changes to the Medicaid program because of savings that can be generated. 

    As you know, ACS CAN has long advocated for expanded access to care through Medicaid, most recently through our Medicaid Covers US campaign, where we are continuing our efforts to expand the program in the remaining 10 states that have not yet acted. Evidence is clear that health insurance is one of the most important determinants of surviving cancer and Medicaid is a lifeline for many cancer patients, survivors, and their families. Therefore, we will be urging Congress to reject any proposals that compromise access to health insurance through Medicaid.
     
    This week, we launched a petition asking volunteers to urge their lawmakers to protect Medicaid. Volunteer leadership teams have also been delivering our First 100 Days priorities directly to district offices, which will be coupled with other impactful campaign strategies over the coming weeks and months. 

    ​Across the country, 48 states are in session, and our Cancer Action Days are underway. In states we continue to focus our priorities on expanding access to patient navigation services, ensuring coverage of biomarker testing, reducing the burden of medical debt, increasing prevention measures, and protecting and expanding Medicaid. 

    Your support is critical! Please lend your voice and help us through your advocacy as we navigate this year's political landscape to elevate the patient voice and our cancer issues to lawmakers. 

    Thank you for your ongoing commitment to our vision to end cancer as we know it, for everyone. 

    - ​ACS CAN President, Lisa Lacasse​

    Celebrating Black History Month 

    This February marks the 49th annual celebration of Black History Month. We’re commemorating this Black History Month by highlighting the importance of health equity and policies that increase equitable access to cancer care for all, raising awareness of cancer disparities in the Black community, spotlighting the pivotal work of our Black volunteers, and honoring Black figures who have made invaluable contributions to health equity and cancer care. Follow along on our social channels for more​. 

    Team Spotlight

    Last month, New Jersey Government Relations Director Quinton Law was sworn in as mayor of his hometown of Mooresto​​wn, NJ. He is the first Black mayor in the town's history. Quinton was inaugurated in the meeting hall of the Town Council, which was bursting with spectators who were there to support. In his first remarks as mayor, Law expressed great pride as a native of Moorestown and gratitude for the responsibility to build on its legacy of unity and prosperity. We at ACS CAN could not be prouder of Quinton!

    In Case You Missed It

    ACS CAN was honored to screen In Due Season at the Families USA Health Action Conference in Washington, D.C. Legislative ambassador Neidre Fears, featured in the film, joined ACS CAN's Tomica Smith and Kristen Keifer for the event. Tomica introduced the film to a captivated audience, followed the next day by a powerful panel discussion on Medicaid expansion and health equity. A heartfelt thank you to ACS CAN team members Hillary Clarke, Mills Sparkman, Lizzy Salinas, and Katie Riley for their support at the exhibitor booth and throughout the conference.

    ​Survivor Views - ACS CAN Released New Data focused on Premium Tax Credits

    According to ACS CAN's latest Survivor Views survey, 86% of cancer patients and survivors who are able to purchase their health insurance on the Marketplace due to tax credits say they would have difficulty getting the care they need without these enhanced premium tax credits. Many of those who responded say they would consider alternatives plans that expose them to greater financial or health risk, such as enrolling in high deductible plans (81%), or plans with less coverage (69%). Further, only 25% were aware before the survey that the enhanced credits are set to expire at the end of 2025.

    Cost Barriers Associated with Diagnostic Tests for Breast Cancer

    ​A new report by ACS CAN reveals that over 70% of commercially-insured breast cancer patients faced out-of-pocket costs for follow-up diagnostic tests in 2023. These tests, such as mammograms, MRIs, ultrasounds, or biopsies, are necessary to confirm cancer, but the costs often discourage patients from getting them. While costs across states. North Dakota had the highest out-of-pocket costs (51.8%), while Northeastern states like Delaware and New York had the lowest (9.0% and 12.9%, respectively). The financial burden has led many women to delay follow-up tests, potentially resulting in later-stage cancer diagnoses and higher treatment costs. Read more. 

    Federal Updates

    ​​​The Prostate-Specific Antigen Screening for High-risk Insured Men (PSA Screening for HIM) Act was introduced in the U.S. Senate by Senators John Boozman (R-AR) and Cory Booker (D-NJ). This bipartisan legislation would eliminate financial barriers to prostate cancer screening by waiving cost-sharing requirements—such as deductibles, copayments, and coinsurance—for high-risk individuals, including Black men and those with a family history of the disease. 

    The Medicare Multi-Cancer Early Detection Screening Coverage Act was introduced in the House and Senate​. Original sponsors in the Senate include Senators Mike Crapo (R-ID), Mike Bennet (D-CO), Tim Scott (R-SC), and Ron Wyden (D-OR), and in the House by Reps. Jodey Arrington (R-TX), Terri Sewell (D-AL), Richard Hudson (R-NC), Raul Ruiz (D-CA), Mariannette Miller-Meeks (R-IA), and Robin Kelly (D-IL). 

    ACS CAN continues to advocate for Congress to complete the FY25 spending bills with the highest possible increases for cancer research and prevention before the current funding patch or Continuing Resolution (CR) expires on March 14th. The One Voice Against Cancer (OVAC) coalition held its annual meeting on January 27th, during which Kathryn Bell, Senior Advisor and Health Policy Staffer for the Senate HELP Committee, shared her insights and outlook for the 119th Congress. A total of 34 coalition members participated in the meeting. 

    Access to Clinical Trials: ACS CAN led 21 other patient advocacy and professional societies in requesting a regulatory safe harbor from the Anti-Kickback Statute that would create more clarity that clinical trial sponsors can legally provide financial support to patients participating in cancer trials. Financial concerns keep many otherwise interested patients from participating, and ACS CAN has worked both legislatively and through regulatory opportunities such as this one to ensure all patients, regardless of financial means, can participate in research. 

    Judicial Updates ​​

    On January 10th, the United States Supreme Court announced its decision to grant the government's petition for certiorari in the Braidwood Management v. Becerra case. At the core of this case is the requirement under the Affordable Care States Preventive Services Task Force (USPSTF) with zero copay. ACS CAN led patient and medical professional organizations in filing an amicus curiae or "friend of the court" brief urging the Supreme Court to take the case and reverse the decision of the U.S. Court of Appeals for the Fifth Circuit as to the constitutionality of the provisions relating to the USPSTF. We argued that the ruling at stake threatens to drastically reduce use of preventive services such as life-saving colorectal and lung cancer screenings. ACS CAN will continue to stay fully engaged in the case, including leading an amicus brief on the merits (to be filed in February) noting that requiring co- pays for these USPSTF-recommended preventive services will create a cost barrier for many, reducing utilization, leading to worse patient outcomes as well as likely increased health care expenses in the long-term. 

    ​In January, ACS CAN led patient and physician groups in filing an amicus brief advocating for broad protections against discrimination for LQBTQ+ individuals in health care services under section 1557 of the Affordable Care Act. Courts had put a favorable rule issued by the Department of Health and Human Services (HHS) on hold, and the January filing marked the third case on this issue which ACS CAN had led amici briefs since late November. Unfortunately, Executive Orders issued in late January will likely result in the government not defending the rule in court and rescinding the rule. 

    On January 24, patient groups representing millions of individuals with serious diseases and health conditions submitted an amicus curiae brief urging the United States Court of Appeals for the Eighth Circuit to uphold Affordable Care Act insurance coverage eligibility to Deferred Action for Childhood Arrivals (DACA) recipients, as permitted by the HHS Final Rule issued in May 2024. In December of 2024, the Eighth Circuit lifted a temporary stay of the preliminary injunction in the case of Kansas v. United States. The injunction was issued following an appeal filed by the Centers for Medicare and Medicaid Services (CMS). As a result, DACA recipients are not able to enroll in Affordable Care Act (ACA) Marketplace plans in the 19 plaintiff states involved in the lawsuit. 

    ACS CAN continues to defend the Food and Drug Administration's (FDA) rule requiring graphic warnings on cigarette packages and advertisements in the endless battles surrounding the rule in court. Most recently, ACS CAN joined an amicus brief filed by tobacco control groups in January in the case of Philip Morris International v. FDA in a U.S. District Court in Georgia.  ​

    ​State Updates​ 

    In Ohio on January 23rd, Rep. Andrea White reintroduced legislation that would increase access to biomarker testing, which could help identify the most effective, patient-specific treatment. Despite its benefits, access to biomarker testing has not kept pace with the rate of innovation due to several barriers, including lack of coverage by private health insurance and Medicaid programs, which Rep. White's legislation would fix. 

    West Virginia has the highest adult smoking rate in the country and over 28% of West Virginia high school students use tobacco products. ACS CAN advocates are calling on Governor Morrisey and lawmakers to increase prevention funding. 

    Governor Mills proposed to increase the Maine cigarette tax by $1 per pack which would increase the tax revenue while at the same time substantially reduce longer term tobacco related health care costs. ACS CAN called on lawmakers to support this proposal. 

    ​Advocacy in the News

    • ​​Bloomberg: Cigarette Nicotine Cuts Proposed in Last-Minute FDA Rule

    • Axios: Lung cancer diagnoses in American women outpace men for first time 

    • Cancer Health: How Would Failing to Extend Tax Credits for Marketplace Health Plans Impact Cancer Patients? 

    • Healthcare Dive: New rule wipes medical debt from consumer credit reports 

    • Medical Economics: Lawmakers, experts weigh in on Medicare Drug Price Negotiation Program 

    • Black Information Network: Radio Segment Featuring ACS CAN Expert Dr. Bruce Waldholtz 

    • Voz: New cancer profile in America: Women and young people 

    • Bangor Daily News: Letter: Higher taxes on cigarettes will benefit Maine

    • Philadelphia Inquirer: New year, new laws: Health reforms hit Pa. and N.J. 

    • Mississippi Today: ‘It’s 2025’: Health care leaders plead with lawmakers to expand Medicaid​​

  • ACS CAN, patient groups urge access to health insurance for DACA recipients

    ​​On Jan. 24, the American Cancer Society Cancer Action Network (ACS CAN) along with other patient groups representing millions of individuals with serious diseases and health conditions submitted an amicus curiae (friend of the court) brief​ urging the U.S. Court of Appeals for the Eighth Circuit to uphold insurance coverage eligibility to Deferred Action for Childhood Arrivals (DACA) recipients, as permitted by the Department of Health and Human Services (HHS) Final Rule issued in May 2024. 

    In Dec. 2024, the Eighth Circuit lifted a temporary stay of the preliminary injunction in the case of Kansas v. United States, which was issued following an appeal filed by the Centers for Medicare and Medicaid Services (CMS). As a result, DACA recipients are not able to enroll in Affordable Care Act (ACA) Marketplace plans in the 19 plaintiff states involved in the lawsuit. 

    The groups on the brief, including ACS CAN, the American Lung Association, Epilepsy Foundation of America, the Leukemia & Lymphoma Society and the Muscular Dystrophy Association, issued the following statement on today’s filing: 

    “Access to affordable and comprehensive health insurance coverage strengthens public health by ensuring people are able to prevent, detect, treat, and survive serious diseases and health conditions. 

    “Since the ACA’s implementation, nearly 50 million people have gained coverage, slashing the rate of uninsured individuals to historic lows. However, approximately 34%​ of DACA recipients lack health insurance coverage even though they work and pay taxes that support the ACA. Before the injunction, the Final Rule was estimated to allow approximately 100,000​ DACA recipients to get health insurance through ACA marketplaces. 

    “Expanding coverage to DACA recipients makes our health system stronger and benefits everyone by lowering uncompensated care costs, reducing the number of individuals who rely on expensive emergency services and contributing to insurance pools with a population that is, on average, younger and healthier. Therefore, we urge the Court of Appeals to uphold granting DACA recipients critical access to affordable health insurance coverage and the peace of mind it provides.” 

    The organizations are represented on a pro bono basis by the law firm of Wilentz, Goldman & Spitzer. 

  • New survey findings impact cancer patients and survivors

    Eighty-six percent of cancer patients and survivors who receive tax credits to afford Marketplace plans say they would have difficulty getting the care they need without the enhanced premium tax credits, according to the latest Survivor Views survey released on Jan. 28, by the American Cancer Society Cancer Action Network (ACS CAN.) Majorities would consider alternatives that expose them to greater financial or health risk, such as enrolling in high deductible plans (81%), or plans with less coverage (69%). Further, 65% were unaware before the survey that the enhanced credits are set to expire at the end of 2025. Read the press release and the full polling memo at fightcancer.org.

    “The enhanced tax credits made it possible for millions more people in America to afford the health coverage they need. These credits mean they can see a doctor regularly, receive lifesaving cancer screenings and if diagnosed with cancer, they could seek the treatment they needed,” said ACS CAN President Lisa Lacasse. “Failing to extend these tax credits would pull the rug out from under cancer patients and survivors, taking away their only quality, affordable health care option thus eliminating their ability to receive the care that would help them get well and stay well. That’s simply unacceptable.”  

    A majority (60%) of survey respondents enrolled in Affordable Care Act (ACA) marketplace plans choose them because they don’t have access to an employer-provided plan. If the enhanced tax credits are not extended, 81% of the self-employed respondents currently receiving them would consider a job change in order to get access to an employer-provided plan, putting small businesses at risk. More than half (56%) of self-employed respondents say they would skip or delay recommended care if the credits expire. 

    “While sadly not surprising, it is always heartbreaking, to hear that cancer patients and survivors still face difficult financial decisions that for some result in skipping or delaying care,” said Lacasse. “This reality will be magnified if the enhanced tax credits expire, forcing individuals to go into medical debt or forgo treatment altogether. Congress must hear these patients’ voices and extend these lifesaving enhanced tax credits immediately.”  

    The data for this survey were collected between Nov. 6 - 26, 2024. A total of 3,565 participants responded to the survey. ACS CAN’s Survivor Views research initiative was designed to support the organization’s efforts to end suffering and death from cancer through public policy advocacy. Data provided by cancer patients and survivors allows for a greater understanding of their experiences and opinions on cancer-related issues and gives voice to cancer patients and survivors in the shaping and advocating of public policies that help prevent, detect and treat cancer and promote a more positive quality of life for those impacted. 

    See ACS CAN’s post on X about the news. 

  • ACS CAN applauds FDA proposed front-of-package labeling requirements

    On Jan. 14, the U.S. Food and Drug Administration (FDA) released a proposed rule on front-of-package (FOP) nutrition labels, that would mandate a nutrition information box on the front of food packages to complement the existing required Nutrition Facts label. The proposed nutrition labeling prominently featured on the front-of-packaging is intended to make nutrition information more accessible to consumers looking to make informed nutrition decisions.

    Last year in anticipation of FDA action, the American Cancer Society Cancer Action Network (ACS CAN) conducted listening sessions with volunteers – people whose lives have been impacted by cancer – to discuss FOP labels. Many of the volunteers discussed how during cancer treatment they were advised to eat a healthy diet, including limiting specific nutrients but they found it challenging to identify healthy foods.

    “Addressing these issues can improve health outcomes for individuals across the cancer continuum, such as reducing a person's risk of a cancer diagnosis and improving long-term outcomes in cancer survivors,” said ACS CAN President Lisa A. Lacasse. “Research has shown that front-of-package labels can be effective at helping consumers make informed nutrition decisions. FDA’s proposed rule is a positive step toward helping people make these healthier food and beverage choices.”

    A study by the American Cancer Society (ACS) estimated about 19% of cancer cases and 17% of cancer deaths were attributed to unhealthful diet, excess body weight, alcohol consumption and physical inactivity combined. ACS recommends following a healthy eating pattern at all ages that includes nutrient-rich foods, to reduce cancer risk and maintain a healthy weight.

  • ACS and ACS CAN issue statement on the passing of President Jimmy Carter

    ​ACS joined the nation in mourning the loss of former president Jimmy Carter, who passed away on Sunday, Dec. 29, after receiving home hospice care since February 2023.

    In 2015, President Carter was diagnosed with cancer. He underwent elective surgery in August 2015 to remove a small mass in his liver. The surgery revealed melanoma, spreading to four different parts of his brain. He was 90 years old at the time.

    “A tremendous advocate for cancer education and prevention in the United States, President Carter helped accelerate progress against the more than 200 diseases we call cancer during his time in office,” said Dr. Wayne A. I. Frederick, interim CEO of ACS and ACS CAN. “Upon receiving his own cancer diagnosis, he benefitted from that progress, undergoing innovative treatment methods made possible by cancer research funded by both the federal government and the American Cancer Society, among others. Our thoughts are with the Carter family during this difficult time.”

    President Carter’s successful treatment was credited to pembrolizumab, a drug that works to harness the body's immune system to fight cancer.

    During President Carter’s administration, he supported an extension of the mandate passed in the National Cancer Act to intensify and expand the national effort to fight cancer. He also signed legislation to emphasize education and demonstration programs in cancer treatment and prevention and directed the National Cancer Institute to devote more resources to prevention, focusing particularly on environmental, dietary and occupational cancer causes.

    There is a history of cancer in Carter's family. His mother died of breast cancer. His father, two sisters and brother all died of pancreatic cancer.

    “We extend our deepest condolences to the Carter family and friends at the loss of this American treasure,” Frederick said.

    What is Melanoma?

    Melanoma is a type of skin cancer that develops when melanocytes (the cells that give the skin its tan or brown color) start to grow out of control. Learn more about melanoma on cancer.org.
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